Cancer Survivors

Talk about things that are not necessarily related to music or the guitar.
Dave Stott
Posts: 157
Joined: Wed Apr 20, 2016 11:24 am
Location: Connecticut

Re: Cancer Survivors

Post by Dave Stott » Tue Mar 07, 2017 1:26 pm

I was diagnosed with Stage 1 melanoma skin cancer on my face about a year ago. I was very fortunate that they caught it before chemo was needed. I now have a 4 inch scar from the surgery across the left side of my face. I'll be seeing the specialist every 3 months for the rest of my life to monitor me to try and catch anything new. I found a melanoma cancer support group that has helped me become more knowledgeable. They've helped me deal with the issues associated with my loss of confidence from the scar as well.

Having melanoma cancer has radically changed my life. I have serious sunscreen on almost 24/7.. I rarely go outside from 10AM - 2PM. If I do, I have long sleeved shirt and hat on. Long walks on the beach during the day are no longer an option for me. I do a full body scan once a week for any new spot or changes in my skin. Any unexpected changes in my weight require a visit to the specialist to see if something is going on inside of me.

It took me 3-4 months before I was able to regain enough confidence to go outside as a result of the major scar on my face.

As of today, I am cancer free... I'm back playing at weekly guitar gatherings and open mic nights.. but there is always the nagging thought about where and when the next bout of cancer will appear.

FYI-- Melonoma is not just skin cancer, it can spread throughout your body.
2015 Cordoba GK Pro Negra
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beanctr
Posts: 119
Joined: Mon Feb 01, 2010 7:43 pm
Location: Coastal, NC

Re: Cancer Survivors

Post by beanctr » Tue Mar 07, 2017 4:22 pm

Radical prostatectomy for me a few years ago in my late 50's, good PSA numbers since. R
"Guitar Hobbyist"

Laudiesdad69
Posts: 830
Joined: Tue Nov 29, 2016 1:16 pm

Re: Cancer Survivors

Post by Laudiesdad69 » Tue Mar 07, 2017 6:14 pm

Dave Stott wrote:I was diagnosed with Stage 1 melanoma skin cancer on my face about a year ago. I was very fortunate that they caught it before chemo was needed. I now have a 4 inch scar from the surgery across the left side of my face. I'll be seeing the specialist every 3 months for the rest of my life to monitor me to try and catch anything new. I found a melanoma cancer support group that has helped me become more knowledgeable. They've helped me deal with the issues associated with my loss of confidence from the scar as well.

Having melanoma cancer has radically changed my life. I have serious sunscreen on almost 24/7.. I rarely go outside from 10AM - 2PM. If I do, I have long sleeved shirt and hat on. Long walks on the beach during the day are no longer an option for me. I do a full body scan once a week for any new spot or changes in my skin. Any unexpected changes in my weight require a visit to the specialist to see if something is going on inside of me.

It took me 3-4 months before I was able to regain enough confidence to go outside as a result of the major scar on my face.

As of today, I am cancer free... I'm back playing at weekly guitar gatherings and open mic nights.. but there is always the nagging thought about where and when the next bout of cancer will appear.

FYI-- Melonoma is not just skin cancer, it can spread throughout your body.
Melanoma is a really bad one. My music theory teacher in high school got it on the top of his head. He was bald, and spent many years in the sun on the deck of a ship when he was younger. He had a black spot on top of his head that grew and grew. By the time he had it looked at by a doctor, it was too late. I am so glad that you caught yours in time. I try not to spend too much time in the sun now, but when I was a kid, the parents and grandparents alway went " you're pale, go outside and get some color". We were encouraged to get a sun tan. I am fair skinned ginger, the only thing I ever got were sun burns. How times have changed.

Scott

dory
Posts: 1611
Joined: Mon Jun 11, 2012 3:29 am
Location: Madison, Wisconsin, USA

Re: Cancer Survivors

Post by dory » Thu Mar 09, 2017 1:42 am

I want to say to everyone struggling with cancer that I am sorry you are going through that. It isn't fun. My niece has has kidney and bladder cancer and we are waiting to find out if a lesion on her liver is cancerous or benign. Cancer is a terrible disease. I am hoping they will find better cures soon.
Dory

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bacsidoan
Posts: 2302
Joined: Sun May 10, 2009 1:59 am

Re: Cancer Survivors

Post by bacsidoan » Thu Mar 09, 2017 1:57 am

dory wrote:I want to say to everyone struggling with cancer that I am sorry you are going through that. It isn't fun. My niece has has kidney and bladder cancer and we are waiting to find out if a lesion on her liver is cancerous or benign. Cancer is a terrible disease. I am hoping they will find better cures soon.
Cancer is part of life. For example 100% of men will have prostate cancer if they live long enough. We can only learn to manage cancer, not to eliminate it.

Guther
Posts: 127
Joined: Mon Dec 10, 2012 3:20 am
Location: California

Re: Cancer Survivors

Post by Guther » Thu Mar 09, 2017 8:33 pm

Reading this helps put things in perspective. The simpler things in life are what matters. Thanks for sharing.
Guther

fraim
Posts: 32
Joined: Sun Dec 18, 2016 2:22 pm
Location: Dallas, TX

Re: Cancer Survivors

Post by fraim » Fri Mar 10, 2017 4:21 am

beanctr wrote:Radical prostatectomy for me a few years ago in my late 50's, good PSA numbers since. R
I was diagnosed 16 months ago in my late 50's. Did my due diligence in finding a surgeon who lived & breathed the study of the disease. Had radical prostatectomy with the davinci robot 13 months ago. All "systems" functioning as before....thankfully!
I wish you the best of luck!

Laudiesdad69
Posts: 830
Joined: Tue Nov 29, 2016 1:16 pm

Re: Cancer Survivors

Post by Laudiesdad69 » Sun Mar 26, 2017 6:09 am

I saw my new doctor a couple of days ago. He is sending me to another Oncologist, this time within the VA system. Will update with any news.

dory
Posts: 1611
Joined: Mon Jun 11, 2012 3:29 am
Location: Madison, Wisconsin, USA

Re: Cancer Survivors

Post by dory » Sun Mar 26, 2017 2:35 pm

I just realized you are the same person who is having troubles with his daughter. I shoukd have realized that instantly, but with avatar names instead of real names I don't always make the connection. I am sorry you are going through a cancer scare at the same time as you are in some sort of struggle with your daughter. They are working on smart insulin but before that (possibly within 5 years) they will have smart insulin pumps, which sense your blood sugar and secrete insulin automatically. I heard a long discussion of this on Wisconsin Public Radio. The man interviewed was Dan Hurley. (I think I have the spelling right.) I have diabetes on both sides of my family and my father is currently on 4 insulin shots a day, so I folliw diabetes research. I just wanted to give you some hope for the brittle diabetes even if I can't with the cancer, not knowing enough and being the "wrong kind of doctor" as my husband always says when I tell him about medical research I have read. (Ok, I read about maybe a tiny bit morebthan diabetes LOL.)
Dory

Laudiesdad69
Posts: 830
Joined: Tue Nov 29, 2016 1:16 pm

Re: Cancer Survivors

Post by Laudiesdad69 » Tue May 30, 2017 2:16 am

Well, thanks to everyone who replied. My test results came back, and I definitely don't have leukemia. My doctor was really surprised, as my white count had been elevated for months. Here is what they told me...

I have a genetic disorder that causes my triglycerides to be abnormally high...over 2 thousand. It causes the viscosity of my blood to be like motor oil. The doctor said that my organs weren't getting perfused well enough. The high triglycerides were causing a chronic, low level pancreatitis - the likely culprit in the matter of the elevated white cells. I also was suffering from diabetic ketoacidosis, but didn't realize it. So what have they done about it?

They put me on a brand new statin drug, which las lowered my triglycerides to 400 in a month. I am also on a blood thinner and huge doses of fish oil capsules. I get tested again in another month, and if the triglycerides stay the same, he might up he dose on the statin.

I am on a long acting insulin now. I give myself one shot every 24 hours. The control of my blood sugar is much better now. And no more DKA. They will check labs again in a month. They also discontinued a few meds, and added a few more. Total medications I take each day are 19 different ones now. They said that I was really lucky, as the ER had sent me home three times in a month, without figuring out what was going on. I still get tired easily, but it's only been a month. The last three or four weeks have been much better. I still don't feel 100% good, but I no longer feel like I'm going to die.

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pogmoor
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Location: Oxfordshire, UK

Re: Cancer Survivors

Post by pogmoor » Tue May 30, 2017 11:24 am

Laudiesdad69 wrote:
Tue May 30, 2017 2:16 am
Well, thanks to everyone who replied. My test results came back, and I definitely don't have leukemia. My doctor was really surprised, as my white count had been elevated for months. Here is what they told me...

I have a genetic disorder that causes my triglycerides to be abnormally high...over 2 thousand. It causes the viscosity of my blood to be like motor oil. The doctor said that my organs weren't getting perfused well enough. The high triglycerides were causing a chronic, low level pancreatitis - the likely culprit in the matter of the elevated white cells. I also was suffering from diabetic ketoacidosis, but didn't realize it. So what have they done about it?
Well, that's a real case of 'good news...bad news'!
I'm really glad to hear that you don't have a cancer diagnosis, but it sounds like you need to take really good care of your health from here on.
Eric from GuitarLoot
Renaissance and Baroque freak; classical guitars by Lester Backshall (2008) and Paul Fischer (1995)
Yamaha SLG 130NW silent classical guitar (2014)

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